Back in Time

When I started this blog, I began the story of when it all started. Moved on to what was happening at that time with the holidays.

I want to get back to the beginning of when it all began for those just getting a fresh start with PKU. The first year with PKU, a newborn and a toddler.

In my first blog I told you about the experience I had with learning of PKU and the overwhelming experience it can be at first. At first, being the key word! You can let it get you down, or you can choose to run with it.

I chose to run with it. The best I could, it has been a real struggle, that is why I created the blog to create the tools for you to be creative and get ahead while they are young.

Here is what to expect, when they are babies you are going to need tools for the kitchen. Mostly common things like, just measuring spoons at first, most expensive tool you will need, is a scale to invest in, but my scale has lasted 11 years so far. So well worth the investment. During the first months you can only bottle feed, so breast feeding is not an option for us. That bottle feeding is a special formula for those with PKU. After the bottle and they move onto baby food that’s when you need to start measuring and counting the food and when it may seem to get more complicated for you.

You will either measure out by using measuring spoons or by grams on a scale. It really isn’t too complicated and once you start doing it everyday, it becomes a part of you.

It may be overwhelming for some but I will never complain about having to do something for my child or say that my child’s diet is an inconvenience for me or them, if they have an opportunity to be healthy and happy. You may feel frustrated at times and feel like it isn’t enough food for them to eat, or that they are still hungry after they are finished. I am not saying that it is going to be easy, it can be hard, overwhelming, frustrating, and you wish you could change things. I have been through it and in the end I always feel I really wouldn’t change him either, I just get frustrated for him that’s all but I would not change him and I am so glad he is happy and healthy. He is 11 and tells all his friends he has PKU. I couldn’t be more proud.